lupus; concordance; race; ethnicity; patient-provider relations
Other Medicine and Health Sciences | Rheumatology | Skin and Connective Tissue Diseases
Background: Health disparities exist among the 1.5 million Americans with lupus, with women of color bearing higher disease rates and burden. Complex reasons include genetics, comorbidities, and socioeconomics. These factors may lead to differences in health-related outcomes in lupus.
Aim: To determine if patient-provider racial/ethnic concordance plays a role in outcomes for adults with lupus.
Method: For this scoping review, the authors searched PubMed Medline and CINAHL using keywords and subject headings for lupus, race or ethnicity, and patient-health professional concordance.
Results: Despite an intentionally broadened search of literature, the authors identified a lack of studies examining the topic.
Conclusions: Certain factors may explain the results: a lack of scientists studying the phenomenon, a focus of funding on bench science, and a non-diverse U.S. healthcare provider workforce. Other factors may exist. Implications for practice, policy, and research are presented.
Delis, Pamela C. PhD, RN, CNE; Corless, Inge B. PhD, RN, FNAP, FAAN; Young, Indigo MS, CCC-SLP; Hildebrand, Mary W. OTD,OTR/L; Bell, Jessica G. MS; and Tarbet, Amanda MSLIS
"Does patient-provider race/ethnicity concordance impact outcomes for adults with lupus?,"
Journal of Health Disparities Research and Practice: Vol. 13:
1, Article 5.
Available at: https://digitalscholarship.unlv.edu/jhdrp/vol13/iss1/5