Sickle Cell Disease; Sickle Cell Trait; Community-Based Participatory Research (CBPR); Health Education; African Americans


Community Health and Preventive Medicine | Congenital, Hereditary, and Neonatal Diseases and Abnormalities | Hematology | Public Health | Public Health Education and Promotion


Background: Sickle cell trait (SCT) screening is required at birth in the United States; however, adults rarely know their SCT status prior to having children.

Purpose: Assess feasibility of a community-based SCT education and testing intervention.

Methods: Participants were recruited from eight community sites to complete an educational program and offered a hemoglobin analysis. A genetic counselor met individually with participants to discuss lab results.

Results: Between July 14, 2010 and May 31, 2012, 637 participants completed the educational program. Five hundred seventy (89.5%) provided a blood sample, and 61 (10.9%) had SCT or other hemoglobinopathies. The genetic counselor met with 321 (56.3%) participants.

Conclusions: Community-based SCT testing shows initial feasibility and may increase the number of individuals who know their trait status.