Sickle Cell Disease; Sickle Cell Trait; Community-Based Participatory Research (CBPR); Health Education; African Americans
Community Health and Preventive Medicine | Congenital, Hereditary, and Neonatal Diseases and Abnormalities | Hematology | Public Health | Public Health Education and Promotion
Background: Sickle cell trait (SCT) screening is required at birth in the United States; however, adults rarely know their SCT status prior to having children.
Purpose: Assess feasibility of a community-based SCT education and testing intervention.
Methods: Participants were recruited from eight community sites to complete an educational program and offered a hemoglobin analysis. A genetic counselor met individually with participants to discuss lab results.
Results: Between July 14, 2010 and May 31, 2012, 637 participants completed the educational program. Five hundred seventy (89.5%) provided a blood sample, and 61 (10.9%) had SCT or other hemoglobinopathies. The genetic counselor met with 321 (56.3%) participants.
Conclusions: Community-based SCT testing shows initial feasibility and may increase the number of individuals who know their trait status.
Housten, Ashley; Abel, Regina; Lindsey, Terianne; and King, Allison
"Feasibility of a Community-Based Sickle Cell Trait Testing and Counseling Program,"
Journal of Health Disparities Research and Practice: Vol. 9
, Article 1.
Available at: https://digitalscholarship.unlv.edu/jhdrp/vol9/iss3/1